ooBdoo.......Rare Diseases News Feeds

About Rare Diseases
Sat, 17 May 2008 10:22:32 +0200

4th International Conference on Rare Diseases and Orphan Drugs
The 4th International Conference on Rare Diseases and Orphan Drugs (ICORD) will be held May 20-22, 2008, in Washington, DC, in honor of the 25th anniversary of the Orphan Drug...
Fri, 16 May 2008 10:41:40 +0200

May 15, 2008 is International MPS Awareness Day
Mucopolysaccharidoses (MPS) are a group of genetic lysosomal storage diseases caused by the body's inability to produce specific enzymes. May 15, 2008, is International MPS Awareness Day. The National MPS...
Wed, 14 May 2008 14:34:17 +0200

Brown-Vialetto-Van Laere Syndrome
Brown-Vialetto-Van Laere syndrome, also known as pontobulbar palsy with deafness, is a nervous system disorder that sometimes runs in families. Only 58 cases have been reported in the worldwide medical...
Sun, 11 May 2008 11:10:53 +0200

First International Meeting of Moebius Syndrome
The First International Meeting of Moebius Syndrome will be held May 16-17, 2008, in Valencia, Spain. Moebius syndrome includes facial paralysis, low muscle tone, and hand and foot deformities. The...
Thu, 08 May 2008 14:42:02 +0200

U.S. Congress passes Genetic Information Nondiscrimination Act
The Genetic Information Nondiscrimination Act of 2007 was created to prohibit discrimination on the basis of genetic information with respect to health insurance and employment. For example, a health insurance...
Wed, 07 May 2008 15:29:21 +0200